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Epilepsy Advocate
Strength in numbers™

Take Charge Tour 2010

Find inspiration, knowledge, and the confidence to manage life on your terms. Discover how


Meet the Advocates

Epilepsy Advocates are people living with epilepsy and caregivers who have refused to compromise and sought the best treatment for controlling seizures with minimal side effects.

By sharing their personal success stories online and within local communities, Epilepsy Advocates strive to inspire people to interact with other people with epilepsy, learn from one another, and make positive changes in each other's lives. It's their personal commitment to making a difference in their community and themselves.

You can get involved now, too, by joining the community or by signing up to attend an upcoming Epilepsy Advocate community event. You'll make new connections, find new inspirations, and discover that, together, there is Strength in numbers™. See below for a list of our advocates and to learn more.

  • Featured Epilepsy Advocates
  • All Epilepsy Advocates
  • Epilepsy advocate - Lydia S.
    Lydia S.
    Diagnosed in 1977
    Seizure Type: Tonic-clonic, simple partial, and complex partial
    En Espanol
  • Epilepsy advocate - LaKeisha P.
    LaKeisha P.
    Diagnosed in 2002
    Seizure Type: Tonic-clonic, simple partial, and complex partial
  • Epilepsy advocate - Kevin E.
    Kevin E.
    Diagnosed in 2002
    Seizure Type: Simple partial and tonic-clonic
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Epilepsy advocate - Adrian E.
Adrian E. - Diagnosed in 1976 - Read Adrian's story
Seizure Type: Complex partial
"Imagination makes me who I am and got me where I am today. "

Epilepsy advocate - Alan C.
Alan C. - Diagnosed in 1961 - Read Alan's story
Seizure Type: Simple partial
"When I was diagnosed, there was only one paragraph in the encyclopedia about epilepsy."

Epilepsy advocate - Amy S.
Amy S. - Diagnosed in 1989 - Read Amy's story
Seizure Type: Tonic-clonic and simple partial
"I was born a fighter and I will fight every day."

Epilepsy advocate - Amy W.
Amy W. - Caregiver of son Spencer - Diagnosed in 2003 - Read Amy's story
Seizure Type: Complex partial
"Helping Spencer live a normal life will help others know they can, too. "

Epilepsy advocate - Andrea H.
Andrea H. - Diagnosed in 1973 - Read Andrea's story
Seizure Type: Nocturnal complex partial and generalized tonic-clonic
"I refuse to let my epilepsy stop me from doing the things I love to do."

Epilepsy advocate - Arlene L.
Arlene L. - Caregiver of husband John - Diagnosed in 1968 - Read Arlene's story
Seizure Type: Tonic-clonic
"Epilepsy is nothing to be ashamed of, nothing to fear. "

Epilepsy advocate - Audrey A.
Audrey A. - Diagnosed in 1972 - Read Audrey's story
Seizure Type: Complex partial
"I don't believe you have to fight your epilepsy, I learned to live positively with it."

Epilepsy advocate - Bill B.
Bill B. - Diagnosed in 1998 - Read Bill's story
Seizure Type: Complex partial
"Why NOT me? "

Epilepsy advocate - Bryan G.
Bryan G. - Diagnosed in 1990 - Read Bryan's story
Seizure Type: Simple partial
"The face of epilepsy is changing with knowledge, awareness, and understanding. "

Epilepsy advocate - Carie W.
Carie W. - Diagnosed in 2002 - Read Carie's story
Seizure Type: Tonic-clonic
"Having epilepsy has made me stronger."

Epilepsy advocate - Cathy C.
Cathy C. - Diagnosed in 1990 - Read Cathy's story
Seizure Type: Simple partial and complex partial
"I'm living proof that there's life after epilepsy."

Epilepsy advocate - Cheryl N.
Cheryl N. - Diagnosed in 2005 - Read Cheryl's story
Seizure Type: Simple partial
"I thought I was going crazy."

Epilepsy advocate - Chris M.
Chris M. - Diagnosed in 1996 - Read Chris' story
Seizure Type: Complex partial
"I am a man with hope. "

Epilepsy advocate - Debbie C.
Debbie C. - Diagnosed in 2001 - Read Debbie's story
Seizure Type: Complex partial
"While I don't let epilepsy define who I am, living with it is a big part of my life."

Epilepsy advocate - Diane H.
Diane H. - Caregiver of daughter Melissa - Diagnosed in 1982 - Read Diane's story
Seizure Type: Complex partial
"Melissa is our beacon of hope."

Epilepsy advocate - Heather E.
Heather E. - Diagnosed in 1994 - Read Heather's story
Seizure Type: Refractory—tonic-clonic, complex partial, frontal lobe, and myoclonic
"Epilepsy is something I have, not something I am."

Epilepsy advocate - Heather O.
Heather O. - Diagnosed in 1984 - Read Heather's story
Seizure Type: Myoclonic and tonic-clonic
"I am determined not to let epilepsy control me or hold me back. "

Epilepsy advocate - Jessica R.
Jessica R. - Diagnosed in 2000 - Read Jessica's story
Seizure Type: Tonic-clonic
"You have to find the strength to love yourself, good things and bad. "

Epilepsy advocate - John D.
John D. - Diagnosed in 2004 - Read John's story
Seizure Type: Simple partial and complex partial
"My life is much more than just living with epilepsy."

Epilepsy advocate - John L.
John L. - Diagnosed in 1968 - Read John's story
Seizure Type: Tonic-clonic
"I am living my life free of fear and shame. "

Epilepsy advocate - Justin Z.
Justin Z. - Diagnosed in 1999 - Read Justin's story
Seizure Type: Tonic-clonic and simple partial
"If you think of epilepsy as a disability, people will treat you that way. "

Epilepsy advocate - Kevin E.
Kevin E. - Diagnosed in 2002 - Read Kevin's story
Seizure Type: Simple partial and tonic-clonic
"Everyone has a challenge in their life, and the way I see it, this is my thing."

Epilepsy advocate - Kristy R.
Kristy R. - Diagnosed in 2000 - Read Kristy's story
Seizure Type: Simple partial
"Every day I wake up, I'm happy. I dance and I sing and I make people laugh."

Epilepsy advocate - LaKeisha P.
LaKeisha P. - Diagnosed in 2002 - Read LaKeisha's story
Seizure Type: Tonic-clonic, simple partial, and complex partial
"You can do anything you put your mind to; the only person who you can stop you is you."

Epilepsy advocate - Larry N.
Larry N. - Caregiver of wife Cheryl - Diagnosed in 2005 - Read Larry's story
Seizure Type: Simple partial
"It's not all milk and honey, but there aren't any sour grapes."

Epilepsy advocate - Louis G.
Louis G. - Diagnosed in 1982 - Read Louis' story
Seizure Type: Tonic-clonic
"Good things can come out of the worst things in life - you never know."

Epilepsy advocate - Lu Ann H.
Lu Ann H. - Diagnosed in 1997 - Read Lu Ann's story
Seizure Type: Complex partial
"Daily living with epilepsy is not a terrible thing; it's something I've come to deal with."

Epilepsy advocate - Lydia S.
Lydia S. - Diagnosed in 1977 - Read Lydia's story
Seizure Type: Tonic-clonic, simple partial, and complex partial
"Let's open the doors and shed some light on epilepsy."

Epilepsy advocate - Maggie D.
Maggie D. - Diagnosed in 1978 - Read Maggie's story
Seizure Type: Complex partial
"I feel a lot better now that I just put it out there—I have epilepsy, so what?"

Epilepsy advocate - Mandiye W.
Mandiye W. - Diagnosed in 2001 - Read Mandiye's story
Seizure Type: Tonic-clonic, simple partial, and complex partial
"I'm not defined by the mistakes of my past, but by the promises of my future. I'm a survivor!"

Epilepsy advocate - Mary Ann H.
Mary Ann H. - Diagnosed in 1964 - Read Mary Ann's story
Seizure Type: Complex partial
"I'm here as living proof that life is a journey."

Epilepsy advocate - Melissa H.
Melissa H. - Diagnosed in 1982 - Read Melissa's story
Seizure Type: Complex partial
"Being open about epilepsy takes away a lot of the fear. "

Epilepsy advocate - Michele G.
Michele G. - Diagnosed in 1989 - Read Michele's story
Seizure Type: Complex partial
"Are you going to let this stop you from living life?"

Epilepsy advocate - Michele W.
Michele W. - Caregiver of daughter Rachel - Diagnosed in 2002 - Read Michele's story
Seizure Type: Complex Partial and nausea epilepsy
"Rachel has brought many blessings into our lives. "

Epilepsy advocate - Phillip G.
Phillip G. - Diagnosed in 1991 - Read Phillip's story
Seizure Type: Absence and complex partial
"I try to see epilepsy as just a small part of my life."

Epilepsy advocate - Rebecca F.
Rebecca F. - Diagnosed in 1997 - Read Rebecca's story
Seizure Type: Complex partial and tonic-clonic
"You don't have to give up your dreams to epilepsy."

Epilepsy advocate - Robin H.
Robin H. - Diagnosed in 2005 - Read Robin's story
Seizure Type: Tonic-clonic
"My friends call me the `Unsinkable Molly Brown.' I totally agree."

Epilepsy advocate - Sherry F.
Sherry F. - Caregiver of son Bryan - Diagnosed in 2004 - Read Sherry's story
Seizure Type: Simple partial and complex partial
"With a lot of hugs, kisses, and laughter, we are making it through."

Epilepsy advocate - Stephanie G.
Stephanie G. - Diagnosed in 1993 - Read Stephanie's story
Seizure Type: Simple partial and complex partial
"I know I am not alone."

Epilepsy advocate - Steven M.
Steven M. - Diagnosed in 1987 - Read Steven's story
Seizure Type: Complex partial and tonic-clonic
"If we didn't laugh, we'd all go insane."

Epilepsy advocate - Susan N.
Susan N. - Diagnosed in 2003 - Read Susan's story
Seizure Type: Complex partial
"I'm feeling like my old self again."

Epilepsy advocate - Tamara S.
Tamara S. - Diagnosed in 2004 - Read Tamara's story
Seizure Type: Tonic-clonic and simple partial
"Life is 1% what happens to you and 99% how you deal with it."

Epilepsy advocate - Tim T
Tim T - Diagnosed in 1979 - Read Tim's story
Seizure Type: Complex partial
"Seek the best care you can find, and don't give up until you are satisfied."

Epilepsy advocate - Todd E.
Todd E. - Caregiver of son Kevin - Diagnosed in 2002 - Read Todd's story
Seizure Type: Simple partial
"The hardest part was knowing I couldn't fix Kevin."

Epilepsy advocate - Victor A.
Victor A. - Diagnosed in 1986 - Read Victor's story
Seizure Type: Tonic-clonic
"It's important for us to be open and share our stories so that others feel safe doing it, too."